Life Expectancy Secondary Progressive Multiple Sclerosis

Life Expectancy Secondary Progressive Multiple Sclerosis 9 out of 10 based on 206 ratings.
 

The goal of treatment is to extend the amount of time someone has relapsing-remitting preventing the person from evolving into secondary -progressive. I am pleased to report that there are six drugs currently available for relapsing-remitting MS. However there is only one FDA-approved treatment for any form of progressive MS and I have already maxed out on dosage.

My aide also gets to don a lead apron so that I can remain pressed into the machine as it squishes me. Life Expectancy Secondary Progressive Multiple Sclerosis i wait for the films to be read while I’m there in case anything needs to be retaken. It’s a better use of time for me to wait around vs. having to return another day and do it all over again. As unpleasant and ridiculous as that experience was I like to think that I might have made it better for the next person in a wheelchair who has a mammogram done at that facility. I guess I appreciate that people give me the benefit of the doubt and think I have more mobility that I actually do but I wish they would assume the worst and not make me feel bad when I can’t stand or even move my legs.

With this new technology I have little excuse not to blog more regularly. Having speech-recognition software is like having your own personal stenographer taking down your every word. It’s empowering for anyone but particularly for me.

The following scenario happened to me the Life Expectancy Secondary Progressive Multiple Sclerosis first time I went for a screening. Tech: Miss Mayo could you come with me? I follow the tech in my wheelchair my aide pushing me. I am handed a gown and given the instructions to put it on with the opening in the front. The tech returns several minutes later. Tech: Can you leave the wheelchair over in the corner there and stand here by the machine? Me: No I can’t stand let alone walk. Tech: Well I don’t know how we are going to be able to do this. Me: I’m going to have my aide wheel me over to the machine and you’re going to lower it down.

Me: There’s only one way to find out. Tech: Is there any way that you can raise up the chair? Me inner voice: Sure I have a magical levitating chair just like Dr. Xavier in X-Men.

My aide also gets to don a lead apron so that I can remain pressed into the machine as it squishes me. I wait for the films to be read while I’m there in case anything needs to be retaken. It’s a better use of time for me to wait around vs.

It might not have been fashionable but it kept me dry. I certainly wasn’t going to run through the rain. I invite my readers to share their suggestions to this problem.

We are our own toughest critic. Let us vent if we need to about our shortcomings even if they are to our fault. Be mindful that the holidays can be hard for us because they remind us of any changes in our condition over the past year.

Best wishes for a Merry Christmas and Happy New Year! Wheelchair hugs are a poor substitute. Real hugs are natural spontaneous and can be initiated by either party. Wheelchair hugs on the other hand are awkward planned and have to be initiated by the standing party –

  • Take the time to go through any included tutorials
  • Until then I will continue to earn the nickname “hell on wheels
  • In other words I’ll keep on writing sporadic though it may be
  • If the pusher holds an umbrella I usually get the runoff and it’s very hard to steer a wheelchair with one hand
  • Here are some things I’ve tried
  • It’s difficult to admit this so believe it when you hear it
  • Maybe that’s the point

. The only way I know to initiate a hug is to say “come over here and give me a hug.

The chronic illness isn’t going anywhere soon unfortunately. Best wishes for a Merry Christmas and Happy New Year! Wheelchair hugs are a poor substitute. Real hugs are natural spontaneous and can be initiated by either party. Wheelchair hugs on the other hand are awkward planned and have to be initiated by the standing party. The only way I know to initiate a hug is to say “come over here and give me a hug.” I can’t just go up to someone and give them a hug. Here’s how it typical wheelchair hug goes. A person comes up to me leans down and over me while I reach up and lean forward.

I started out that way but over timeI progressed. At first it was relapsing-progressive and now it can be categorized as secondary -progressive. Many people with relapsing-remitting will eventually switch to secondary progressive.

Fortunately many doctors’ offices have a drop-off with an overhang. Since many of my appointments are medical in nature I don’t have to worry about the weather as much. I know an engineering professor who assigns this problem to his students.

Don’t expect for everything to go perfectly the first time. Start slowly and gradually increase your speed. Remember
Life Expectancy Secondary Progressive Multiple Sclerosis
that the computer is only as smart as you are. If you aren’t making any sense the computer just puts down what it hears.

It may be helpful to consider the chronic illness as an unwanted guest. Make sure to keep the holidays about friends family and fun. The chronic illness isn’t going anywhere soon unfortunately.

Do not look at the screen when you dictate and try to speak at a normal pace and tone. A good model is a newscaster reading from a teleprompter. Don’t expect for everything to go perfectly the first time.

I am pleased to report that there are six drugs currently available for relapsing-remitting MS. However there is only one FDA-approved treatment for any form of progressive MS and I have already maxed out on dosage. Without the approval of the FDA insurance companies consider using the available drugs as experimental and they won’t cover their significant cost. At least I didn’t have the most sinister form of MS primary progressive. That’s bad and the generative from the start.

There have been significant improvements in treating symptoms. For spasticity in my legs I have a titanium pump that delivers medicine directly into my spinal fluid. For spasticity in my arm there are botox injections. I also take a large variety of drugs and supplements throughout the day. In previous years I’ve given tips for people with chronic illness on how to survive the holidays. This year I’ve decided to do something different. Here’s my list of things that well-family members and friends need to know about their person with MS or another chronic illness.

I just got there sooner. How your disease is categorized is actually very important. Because most people with Life Expectancy Secondary Progressive Multiple Sclerosis MS have relapsing-remitting the drugs available currently are for that type only.

If I hold the umbrella it gets in the way of the person pushing me. If the pusher holds an umbrella I usually get the runoff and it’s very hard Life Expectancy Secondary Progressive Multiple Sclerosis to steer a wheelchair with one Life Expectancy Secondary Progressive Multiple Sclerosis hand. Umbrella hats are Life Expectancy Secondary Progressive Multiple Sclerosis just dumb-looking and only keep your head dry. Rain slicker This doesn’t work for the passenger because there is run off from the slicker onto the lap.

I am handed a gown and given the instructions to put it on with the opening in the front. The tech returns several minutes later. Tech: Can you leave the wheelchair over in the corner there and stand here by the machine? Me: No I can’t stand let alone walk.

I just got there sooner. How your disease is categorized is actually very important. Because most people with MS have relapsing-remitting the drugs available currently are for that type only.

The real reason I’ve returned to the blog is because I was reminded that there are people out there dealing with MS issues for the first time. These people want guidance information and maybe even a laugh or two. With the 13th anniversary of my diagnosis approaching quickly I feel that is my duty to continue to spread the word about living with MS. After all I never know who is out there in cyberspace reading my blog and gaining some insight into their situation. So I consider this a new beginning for my blog and encourage all of you to join me as I continue to battle MS the healthcare system and society in general.

I just got there sooner. How your disease is categorized is actually very important. Because most people with MS have relapsing-remitting the drugs available currently are for that type only. The goal of treatment is to extend the amount of time someone has relapsing-remitting preventing the person from evolving into secondary -progressive. I am pleased to report that there are six rugs currently available for relapsing-remitting MS. However there is only one FDA-approved treatment for any form of progressive MS and I have already maxed out on dosage.

A slicker is a good idea for the pusher. Rain poncho This doesn’t work either because it’s hard to find your arms for transferring. It does solve the runoff problem however. Stay home This is the best option but I can’t always cancel appointments just because it’s raining. Fortunately many doctors’ offices have a drop-off with an overhang. Since many of my appointments are medical in nature I don’t have to worry about the weather as much. I know an engineering professor who assigns this problem to his students.

I went for my annual screening mammogram on the very day that new guidelines were announced. According to the revision I don’t have to have the test done until age 50 and then only every other year. I choose to ignore this suggestion and continue doing what I’ve been doing as long as my insurance company continues to pay for it.

I invite my readers to share their suggestions to this problem. In the meantime if you see someone struggling with a cane walker or wheelchair on a rainy day take a moment and ask if they need any assistance. I assure you that your help will be greatly appreciated if there is a door that needs opening. If you want to reach me I’m waiting for the rain to stopRecently I purchased a new PC.

Tech: Well I don’t know how we are going to be able to do this. Me: I’m going to have my aide wheel me
Life Expectancy Secondary Progressive Multiple Sclerosis
over to the machine and you’re going to lower it down. Tech: I’m not sure that it goes that low.

When I began this blog my goal was to write every other week. That soon became every month and then every couple of months. Now I haven’t made an entry since November. It’s not that I have nothing to say; I just worry that I say the same things over and over again. Maybe that’s the point. Living with MS can be monotonous and tedious. For example I see the same doctors every three months which leads to insurance billing problems every three months.

http://mstreatment.info/multiple-sclerosis-doctors-in-maine/
http://mstreatment.info/multiple-sclerosis-society-minnesota-55415/
http://www.neurology.ucla.edu/index.jsp?m=3&s=6_4
http://www.sahp.vcu.edu/vcoa/newsletter/ageaction/agesu03.htm
http://mstreatment.info/new-treatment-for-multiple-sclerosis-2010/
https://www.owens.edu/owens_today/archive/yesterday/NR0303.html

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